How to Talk to Your Neurologist About Clinical Trials

Whether you're a patient exploring your own options or a family member researching on someone's behalf, here's how to start talking about clinical trials with your doctor.

Start Before the Appointment

Send a message a few days before your appointment through your patient portal. Something simple: "I've been looking into clinical trials and would like to spend a few minutes discussing whether any might be appropriate."

What to Bring

One or two specific trials you want to discuss is plenty. For each trial, know the basics: what it's studying, what phase it's in, what participation would look like, and whether you meet the eligibility criteria.

How to Open the Conversation

Position your doctor as the decision-maker, signal that you've done some homework, and open the door without putting anyone on the defensive.

Questions Worth Asking

• Does this trial seem appropriate given the current stage of the disease?
• Would participating affect the current treatment plan?
• Is there anything about this trial that concerns you?
• Do you know anyone at this research site we could contact?

If Your Doctor Is Dismissive

It's okay to say: "Would you be open to me reaching out to the trial directly just to learn more, even if we decide it's not the right fit?" Movement disorder specialists tend to have a more active relationship with the research landscape.

The Conversation Is the Most Important Step

Everything before the appointment is just preparation. The conversation with your neurologist is where things actually move forward.