---
title: Identify inherited genes causing Parkinson
nct_id: NCT01558479
status: RECRUITING
sponsor: University of Washington
study_type: OBSERVATIONAL
canonical_url: "https://parkinsonspathways.com/trial/NCT01558479"
clinicaltrials_gov: "https://clinicaltrials.gov/study/NCT01558479"
last_fetched: "2026-05-10T14:05:00.816Z"
source: "Parkinson's Pathways (curated)"
---
# Identify inherited genes causing Parkinson

**Goal (in five words):** Identify inherited genes causing Parkinson

**Official Title:** The Parkinson's Genetic Research Study (PaGeR)

**Trial ID:** [NCT01558479](https://clinicaltrials.gov/study/NCT01558479)

## Key Facts

- **Status:** RECRUITING
- **Study Type:** OBSERVATIONAL
- **Sponsor:** University of Washington
- **Target Enrollment:** 5000 participants
- **Start Date:** 2009-09
- **Completion Date:** 2026-10-31
- **Conditions:** Parkinson's Disease

## Summary For Families

PaGeR looks for inherited genetic changes that increase the risk of Parkinson's or shape how the disease starts and progresses in families, with the goal of pointing to biological pathways for future tests or treatments. Researchers gather family histories and DNA samples from relatives in affected families and analyze genetic variants across those families, this is observational so there is no drug or device to try. The study is enrolling adults age 18 and older who are members of families with two or more living people diagnosed with Parkinson's.

## Eligibility

- **Minimum age:** 18 Years
- **Sex:** ALL

### Full Criteria

```
Inclusion Criteria:

* Over 18 years of age
* Member of a family in which there are two or more living individuals who have been diagnosed with Parkinson's disease

Exclusion Criteria:

* Under 18 years of age
```

## Locations (5)

- Emory University/ Wesley Woods Health Center, Atlanta, Georgia, United States _(33.7490, -84.3880)_
  - Barbara Sommerfield, MSN, RN — (CONTACT) — 404-728-6944 — bsommer@emory.edu
- University of Cincinnati, Cincinnati, Ohio, United States _(39.1271, -84.5144)_
  - Jatue Krier — (CONTACT) — 513-558-0169 — katie.krier@uc.edu
- Portland VA Medical Center, Portland, Oregon, United States _(45.5234, -122.6762)_
  - Susan O'Connor — (CONTACT) — 503-220-8262
- VA Puget Sound Health Care System, Seattle, Washington, United States _(47.6062, -122.3321)_
  - Jennifer Pate — (CONTACT) — 855-646-4221
  - Cyrus Zabetian, MD, MS — (PRINCIPAL_INVESTIGATOR)
- University of Washington, Seattle, Washington, United States _(47.6062, -122.3321)_
  - Jennifer Pate — (CONTACT) — 855-646-4221
  - Cyrus Zabetian, MD, MS — (PRINCIPAL_INVESTIGATOR)

## Central Contacts

- Jennifer Pate — (CONTACT) — 1-855-646-4221
- Khryss Capawa — (CONTACT) — (206) 277-3956 — kcapawa@uw.edu

---

*Canonical: https://parkinsonspathways.com/trial/NCT01558479*  
*HTML version: https://parkinsonspathways.com/trial/NCT01558479*  
*Source data: https://clinicaltrials.gov/study/NCT01558479*