---
title: Improve access to Parkinson care
nct_id: NCT05532982
status: RECRUITING
sponsor: Tufts University
study_type: OBSERVATIONAL
canonical_url: "https://parkinsonspathways.com/trial/NCT05532982"
clinicaltrials_gov: "https://clinicaltrials.gov/study/NCT05532982"
last_fetched: "2026-05-10T14:07:08.816Z"
source: "Parkinson's Pathways (curated)"
---
# Improve access to Parkinson care

**Goal (in five words):** Improve access to Parkinson care

**Official Title:** Barriers and Motivators Associated With Access to Care and Participation in Research Studies for Parkinson's Disease Among Asian Americans

**Trial ID:** [NCT05532982](https://clinicaltrials.gov/study/NCT05532982)

## Key Facts

- **Status:** RECRUITING
- **Study Type:** OBSERVATIONAL
- **Sponsor:** Tufts University
- **Target Enrollment:** 430 participants
- **Start Date:** 2022-10-15
- **Completion Date:** 2024-11-30
- **Conditions:** Parkinson's Disease
- **Interventions:** Interviews and Surveys
- **Intervention Types:** OTHER

## Summary For Families

The goal is to identify the specific barriers and motivators that affect access to Parkinson's care and willingness to join research among Chinese and Vietnamese Americans, so future services and studies can be more reachable and culturally responsive. Researchers will review Tufts Movement Disorders Clinic records from 2010 to 2019 and gather real-world experiences through interviews, focus groups, and surveys by phone or Zoom with patients, care partners, clinicians, and community advocates to pinpoint issues like language access, transportation, trust, and knowledge about research. Eligible participants are adults 18 and older, focusing on Chinese or Vietnamese people with Parkinson's and their primary care partners, plus clinicians and community advocates who work with older Asian Americans. Patients with juvenile-onset Parkinson's are excluded, and people with dementia or taking medications for cognitive impairment are not eligible for the interviews.

## Eligibility

- **Minimum age:** 18 Years
- **Sex:** ALL

### Full Criteria

```
Inclusion Criteria:

* Objective 1 (chart review):

  1. Chinese or Vietnamese ethnicity
  2. Age: 18 years of age or older
  3. Diagnosed or presented for PD care at the Tufts Medical Center (TMC) Movement Disorders Clinic (MDC) from January 1, 2010 to December 31, 2019.
* Objective 2 (qualitative study):

  1. Asian American person diagnosed with PD:

     1. Diagnosed with PD
     2. Chinese or Vietnamese ethnicity
     3. Age: 18 years of age or older
     4. Able to participate in an interview by phone or on Zoom
     5. Able to provide informed consent
  2. Primary caregivers of Asian American PD patients recruited into the study:

     1. Age: 18 years of age or older
     2. First-degree family member or spouse
     3. Self-identified as a primary caregiver of an Asian American person with PD
     4. Able to participate in an interview by phone or on Zoom
     5. Able to provide informed consent
  3. Clinicians:

     1. Any clinician (e.g. primary care provider, neurologist, resident, nurse, nurse practitioner, etc) that takes care of PD patients.
     2. Age: 18 years of age or older
  4. Key advocates in the Asian American community working specifically with the Asian elderly population.

     1. Employee or volunteer for a community-based organization working with the Asian elderly population (e.g. Greater Boston Chinese Golden Age Center, South Cove Manor, and Midtown Home Health Services) or other organizations working with PD patients and the elderly (e.g. Massachusetts Council on Aging and the Massachusetts Chapter of the American Parkinson's Disease Association)
     2. Age: 18 years of age or older
     3. Able to participate in a focus group discussion on Zoom

        Objective 3 (surveys of care partners of Asian American individuals with PD):

  <!-- -->

  1. Chinese or Vietnamese ethnicity
  2. Primary care partner of a family member with Parkinson's Disease
  3. Age: 18 years of age or older
  4. Care partner or family member with Parkinson's Disease must be of Asian descent

Exclusion Criteria:

Objective 1:

1\. Patients diagnosed with juvenile-onset Parkinson's Disease

Objective 2:

PD patients only:

1. Patients with juvenile-onset Parkinson's Disease
2. Patients diagnosed with dementia
3. Patients on medication for cognitive impairment, e.g., anti-psychotics, donepezil (Aricept), rivastigmine (Exelon), and galantamine (Razadyne)

No exclusion criteria for other stakeholder groups (caregivers, clinical providers, key community advocates).

Objective 3:

1\. Patients with juvenile-onset Parkinson's Disease
```

## Locations (1)

- Tufts University School of Medicine, Boston, Massachusetts, United States _(42.3584, -71.0598)_
  - Alice Tang — (CONTACT) — 617-513-9104 — alice.tang@tufts.edu

## Central Contacts

- Alice Tang, PhD — (CONTACT) — 617-636-2140 — alice.tang@tufts.edu
- Naheed Esar — (CONTACT) — nesar@asianwomenforhealth.org

---

*Canonical: https://parkinsonspathways.com/trial/NCT05532982*  
*HTML version: https://parkinsonspathways.com/trial/NCT05532982*  
*Source data: https://clinicaltrials.gov/study/NCT05532982*