Identify modifiable factors slowing progression
- Trial ID
- NCT02194816
- Official Title
- Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]
- Goal
- Identify modifiable factors slowing progression
- Status
- RECRUITING
- Sponsor
- Bastyr University
- Study Type
- OBSERVATIONAL
- Enrollment
- 2000 participants
- Conditions
- Parkinson's Disease, Parkinsonism, MSA - Multiple System Atrophy, Progressive Supranuclear Palsy, Shy-Drager Syndrome, Corticobasal Degeneration, Dementia With Lewy Bodies, Pick Disease, Olivopontocerebellar Atrophies
Plain-Language Summary
The goal is to find everyday, changeable factors that affect symptoms and progression in Parkinson's and related parkinsonism disorders, so simple care or lifestyle changes might improve quality of life. Participants complete detailed online surveys about symptoms, medications, lifestyle and environmental exposures every six months for five years, letting researchers link those modifiable variables to outcomes; no drugs or devices are being tested. The study is enrolling adults 19 and older with Parkinson's disease, parkinsonism, or Parkinson-plus syndromes who can read and write English, have internet access and an email address, and are willing to spend about 90 minutes on surveys every six months.
Locations
- Bastyr University, Kenmore, Washington, United States
Frequently Asked Questions
- What is this trial testing?
- This trial is studying an experimental treatment. The goal is to find everyday, changeable factors that affect symptoms and progression in Parkinson's and related parkinsonism disorders, so simple care or lifestyle changes might improve quality of life. Participants complete detailed online surveys about symptoms, medications, lifestyle and environmental exposures every six months for five years, letting researchers link those modifiable variables to outcomes; no drugs or devices are being tested. The study is enrolling adults 19 and older with Parkinson's disease, parkinsonism, or Parkinson-plus syndromes who can read and write English, have internet access and an email address, and are willing to spend about 90 minutes on surveys every six months.
- Who can participate?
- Participants must be at least 19 Years.
- Where is this trial located?
- This trial is recruiting at 1 location.
- Does it cost anything to join?
- No. There is no cost to participate. Study-related care and treatment are provided at no charge.
- How long does the trial last?
- This trial is estimated to last approximately 18 years and 3 months.