Detect inherited Parkinson gene variants
- Trial ID
- NCT02760108
- Official Title
- Parkinson's Families Project
- Goal
- Detect inherited Parkinson gene variants
- Status
- RECRUITING
- Sponsor
- University College, London
- Study Type
- OBSERVATIONAL
- Enrollment
- 2000 participants
- Conditions
- Parkinson's Disease, Parkinsonism
Plain-Language Summary
The project aims to map familial and early-onset Parkinson's to spot patterns and risk factors that could point to genetic causes or guide future treatments. It is an observational program that collects clinical information and detailed family history from people with Parkinson's or parkinsonism and from their first and second degree relatives, both affected and unaffected, to look for those patterns. They are enrolling people aged 16 and older who have a clinical diagnosis of Parkinson's disease or parkinsonism and either have a first or second degree family member with Parkinson's/parkinsonism or had symptom onset before age 45, as well as first and second degree relatives of an index case. People who cannot give informed consent are not eligible.
Locations
- Royal Free London NHS Foundation Trust, London, United Kingdom
- University College London Hospitals NHS Foundation Trust, London, United Kingdom
Frequently Asked Questions
- What is this trial testing?
- This trial is studying an experimental treatment. The project aims to map familial and early-onset Parkinson's to spot patterns and risk factors that could point to genetic causes or guide future treatments. It is an observational program that collects clinical information and detailed family history from people with Parkinson's or parkinsonism and from their first and second degree relatives, both affected and unaffected, to look for those patterns. They are enrolling people aged 16 and older who have a clinical diagnosis of Parkinson's disease or parkinsonism and either have a first or second degree family member with Parkinson's/parkinsonism or had symptom onset before age 45, as well as first and second degree relatives of an index case. People who cannot give informed consent are not eligible.
- Who can participate?
- Participants must be at least 16 Years.
- Where is this trial located?
- This trial is recruiting at 2 locations.
- Does it cost anything to join?
- No. There is no cost to participate. Study-related care and treatment are provided at no charge.
- How long does the trial last?
- This trial is estimated to last approximately 11 years and 9 months.