Map Parkinson progression in carriers

Trial ID
NCT03523104
Official Title
The Chinese Parkinson's Disease With LRRK2 Variants Registry
Goal
Map Parkinson progression in carriers
Status
RECRUITING
Sponsor
Xiangya Hospital of Central South University
Study Type
OBSERVATIONAL
Enrollment
1000 participants
Conditions
Parkinson Disease

Plain-Language Summary

The goal is to map how Parkinson's linked to changes in the LRRK2 gene presents and progresses, so researchers can better understand symptoms, progression, and treatment responses in this genetic subgroup. The project is an observational registry that collects medical history, genetic test results, and follow-up clinical data rather than testing a treatment, building a large dataset to study genotype-phenotype links and the natural history of LRRK2-associated PD. Enrollment is open in China to people diagnosed with Parkinson's who have a confirmed LRRK2 variant, the registry plans about 1,000 participants, and no age or sex limits are listed.

Locations

  • Xiangya Hospital of Central South University, Changsha, Hunan, China

Frequently Asked Questions

What is this trial testing?
This trial is studying an experimental treatment. The goal is to map how Parkinson's linked to changes in the LRRK2 gene presents and progresses, so researchers can better understand symptoms, progression, and treatment responses in this genetic subgroup. The project is an observational registry that collects medical history, genetic test results, and follow-up clinical data rather than testing a treatment, building a large dataset to study genotype-phenotype links and the natural history of LRRK2-associated PD. Enrollment is open in China to people diagnosed with Parkinson's who have a confirmed LRRK2 variant, the registry plans about 1,000 participants, and no age or sex limits are listed.
Who can participate?
Eligibility criteria vary. Check the full listing on ClinicalTrials.gov for detailed inclusion and exclusion criteria.
Where is this trial located?
This trial is recruiting at 1 location.
Does it cost anything to join?
No. There is no cost to participate. Study-related care and treatment are provided at no charge.
How long does the trial last?
This trial is estimated to last approximately 10 years.

View on ClinicalTrials.gov