Parkinson's Trial NCT04496973
Connect patients to exercise research
- Trial ID
- NCT04496973
- Official Title
- University of Delaware Participant Recruitment Registry for Parkinson's Disease Research
- Goal
- Connect patients to exercise research
- Status
- RECRUITING
- Sponsor
- University of Delaware
- Study Type
- OBSERVATIONAL
- Enrollment
- 1000 participants
- Conditions
- Parkinson Disease
Summary For Families
The goal is to build a volunteer registry at the University of Delaware to speed up recruitment for future Parkinson's research, helping studies on things like brain changes, balance and walking, and how exercise affects movement. People who join give contact details and some basic health information about their Parkinson's diagnosis so researchers can contact them when a suitable study starts. To join you must be 21 or older, have a clinical diagnosis of Parkinson's disease, and be willing to be contacted about research. People whose symptoms come from a different condition that mimics Parkinson's or who have dementia are not eligible.
Locations
- University of Delaware, Newark, Delaware, United States
Frequently Asked Questions
- What is this trial testing?
- This trial is studying an experimental treatment. The goal is to build a volunteer registry at the University of Delaware to speed up recruitment for future Parkinson's research, helping studies on things like brain changes, balance and walking, and how exercise affects movement. People who join give contact details and some basic health information about their Parkinson's diagnosis so researchers can contact them when a suitable study starts. To join you must be 21 or older, have a clinical diagnosis of Parkinson's disease, and be willing to be contacted about research. People whose symptoms come from a different condition that mimics Parkinson's or who have dementia are not eligible.
- Who can participate?
- Participants must be between 21 Years and 100 Years.
- Where is this trial located?
- This trial is recruiting at 1 location.
- Does it cost anything to join?
- You are never charged a fee to join a legitimate clinical trial, and the study treatment and study-specific tests are provided by the trial sponsor at no charge. In the US, routine care you would receive anyway can still be billed to you or your insurance; coverage rules differ by country, and trials in the UK and Canada usually run through public health systems. Travel, parking, and time are real costs, and some trials reimburse them while others do not. Before enrolling, ask the study coordinator to explain in writing what is and is not covered.
- How long does the trial last?
- This trial is estimated to last approximately 9 years and 7 months.
- Can I leave the trial if I change my mind?
- Yes. You can withdraw from any clinical trial at any time, for any reason, without affecting your standard medical care. Trials are voluntary by law. The team may ask if you are willing to do a brief exit visit so they can collect safety information, but you are not obligated.
- Can my spouse or care partner come with me to visits?
- In most cases yes, and it is often encouraged. Care partners can help with notes, questions, and getting home safely after a long visit. Some study assessments do need to happen one on one, but care partners are usually welcome for the rest of the appointment.
- Will I get a placebo in this trial?
- This is an observational study, so there is no placebo and no experimental treatment is assigned. Researchers observe and collect information while you continue your usual care.