Non-interventional for Parkinson's (NCT05066763)
Track tremor severity over time
- Trial ID
- NCT05066763
- Official Title
- Parkinson's Foundation Surveys
- Goal
- Track tremor severity over time
- Status
- RECRUITING
- Sponsor
- Parkinson's Foundation
- Study Type
- OBSERVATIONAL
- Enrollment
- 1000000 participants
- Conditions
- Parkinson Disease
- Interventions
- Non-interventional
Summary For Families
The goal is to collect real-world experiences from people affected by Parkinson's so the Parkinson's Foundation can identify unmet needs, shape future research priorities, and improve programs and services. The approach is non-interventional surveys, asking people with Parkinson's, their care partners, and clinicians about symptoms, treatments, daily challenges, and research interests, and the aggregated answers are used to guide funding decisions and the design of future studies. Anyone 18 or older who self-reports a Parkinson's diagnosis, is a care partner for someone with Parkinson's, or is a health professional who regularly works with people with Parkinson's, and who is willing to be contacted, is eligible to participate.
Locations
- Parkinson's Foundation, Miami, Florida, United States
Frequently Asked Questions
- What is this trial testing?
- This trial is studying Non-interventional. The goal is to collect real-world experiences from people affected by Parkinson's so the Parkinson's Foundation can identify unmet needs, shape future research priorities, and improve programs and services. The approach is non-interventional surveys, asking people with Parkinson's, their care partners, and clinicians about symptoms, treatments, daily challenges, and research interests, and the aggregated answers are used to guide funding decisions and the design of future studies. Anyone 18 or older who self-reports a Parkinson's diagnosis, is a care partner for someone with Parkinson's, or is a health professional who regularly works with people with Parkinson's, and who is willing to be contacted, is eligible to participate.
- Who can participate?
- Participants must be at least 18 Years.
- Where is this trial located?
- This trial is recruiting at 1 location.
- Does it cost anything to join?
- You are never charged a fee to join a legitimate clinical trial, and the study treatment and study-specific tests are provided by the trial sponsor at no charge. In the US, routine care you would receive anyway can still be billed to you or your insurance; coverage rules differ by country, and trials in the UK and Canada usually run through public health systems. Travel, parking, and time are real costs, and some trials reimburse them while others do not. Before enrolling, ask the study coordinator to explain in writing what is and is not covered.
- How long does the trial last?
- This trial is estimated to last approximately 9 years and 8 months.
- Can I leave the trial if I change my mind?
- Yes. You can withdraw from any clinical trial at any time, for any reason, without affecting your standard medical care. Trials are voluntary by law. The team may ask if you are willing to do a brief exit visit so they can collect safety information, but you are not obligated.
- Can my spouse or care partner come with me to visits?
- In most cases yes, and it is often encouraged. Care partners can help with notes, questions, and getting home safely after a long visit. Some study assessments do need to happen one on one, but care partners are usually welcome for the rest of the appointment.
- Will I get a placebo in this trial?
- This is an observational study, so there is no placebo and no experimental treatment is assigned. Researchers observe and collect information while you continue your usual care.
- What procedures are involved in this trial?
- Based on the protocol, this trial involves: Questionnaires & surveys (non-invasive). Confirm the full schedule with the study coordinator.