Improve access to Parkinson care
- Trial ID
- NCT05532982
- Official Title
- Barriers and Motivators Associated With Access to Care and Participation in Research Studies for Parkinson's Disease Among Asian Americans
- Goal
- Improve access to Parkinson care
- Status
- RECRUITING
- Sponsor
- Tufts University
- Study Type
- OBSERVATIONAL
- Enrollment
- 430 participants
- Conditions
- Parkinson's Disease
- Interventions
- Interviews and Surveys
Plain-Language Summary
The goal is to identify the specific barriers and motivators that affect access to Parkinson's care and willingness to join research among Chinese and Vietnamese Americans, so future services and studies can be more reachable and culturally responsive. Researchers will review Tufts Movement Disorders Clinic records from 2010 to 2019 and gather real-world experiences through interviews, focus groups, and surveys by phone or Zoom with patients, care partners, clinicians, and community advocates to pinpoint issues like language access, transportation, trust, and knowledge about research. Eligible participants are adults 18 and older, focusing on Chinese or Vietnamese people with Parkinson's and their primary care partners, plus clinicians and community advocates who work with older Asian Americans. Patients with juvenile-onset Parkinson's are excluded, and people with dementia or taking medications for cognitive impairment are not eligible for the interviews.
Locations
- Tufts University School of Medicine, Boston, Massachusetts, United States
Frequently Asked Questions
- What is this trial testing?
- This trial is studying Interviews and Surveys. The goal is to identify the specific barriers and motivators that affect access to Parkinson's care and willingness to join research among Chinese and Vietnamese Americans, so future services and studies can be more reachable and culturally responsive. Researchers will review Tufts Movement Disorders Clinic records from 2010 to 2019 and gather real-world experiences through interviews, focus groups, and surveys by phone or Zoom with patients, care partners, clinicians, and community advocates to pinpoint issues like language access, transportation, trust, and knowledge about research. Eligible participants are adults 18 and older, focusing on Chinese or Vietnamese people with Parkinson's and their primary care partners, plus clinicians and community advocates who work with older Asian Americans. Patients with juvenile-onset Parkinson's are excluded, and people with dementia or taking medications for cognitive impairment are not eligible for the interviews.
- Who can participate?
- Participants must be at least 18 Years.
- Where is this trial located?
- This trial is recruiting at 1 location.
- Does it cost anything to join?
- No. There is no cost to participate. Study-related care and treatment are provided at no charge.
- How long does the trial last?
- This trial is estimated to last approximately 2 years and 2 months.